We make the invisible visible to enhance the sharing of knowledge about these diseases, thereby enabling patients and their families to have a better quality of life.
NMO France is the first and only patient organization in France and the Francophone world dedicated to people affected by Neuromyelitis Optica (NMO) Spectrum Disorder (or NMOSD), formerly known as Devic’s Disease, as well as other rare inflammatory diseases of the brain and spinal cord such as MOG antibody-associated disease (MOGAD), transverse myelitis, acute disseminated encephalomyelitis (ADEM) and optic neuritis (ON). NMO France’s main mission is to inform and support people affected by these diseases. Like a beacon of light, we illuminate these rare and poorly understood diseases by sharing current knowledge and the experiences of those living with them. At NMO France, we are here to listen, to hear your voice and to keep you informed.
In the context of rare diseases, a diagnostic odyssey is a frequent occurrence, due to the rarity of these diseases and the resulting lack of knowledge about them. Waiting for a diagnosis can be a long and tiring process. NMO France can help guide you towards better care, both now and in the future.
By forming a community of people concerned by these rare diseases, we aim to share our experiences and collaborate actively with all stakeholders in areas such as support for patients and their families, advice and guidance, healthcare services and scientific research.
